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Children with Life-Threatening Illnesses Receive Hospice Care:




 

WASHINGTON, Oct. 15 /PRNewswire-USNewswire/ -- With support from the U.S. Agency for International Development (USAID) and funding from the U.S. President's Emergency Plan for AIDS Relief (PEPFAR) and other groups, Soweto Hospice has developed one of South Africa's first children's units to provide specialty care and reduce suffering endured by youngsters with life-threatening illnesses, including AIDS and cancer.

Without access to the care they need, people suffer horrific and unacceptable levels of distress. Hospice fills the gap by relieving suffering physically, emotionally and spiritually, performing vital work on the front line of caring for people who face the end of life. General hospitals have little, if any, support to offer such children. Professional Hospice personnel can and do look after these desolate little ones. One doctor recalls a stern lecture from the 10-year-old son of a domestic worker who said, "Treat me as a person, not a patient."

Soweto Hospice offers a wide range of life-saving and love-giving services from a multidisciplinary team of doctors, psychologists, social workers, nurses, and case workers, along with a palliative care unit, pediatric unit, home-based care, volunteers and many more resources available to children and their families. Many children facing terminal illness experience some of their happiest moments at Hospice because they've received appropriate nutrition, pain control, medical care and counseling and loving attention, explains a Soweto Hospice pediatric doctor commemorating World Hospice and Palliative Care Day.

Palliative care aims to improve the quality of life for people living with and dying from a terminal illness by preventing and relieving suffering through expert pain and symptom relief, as well as practical help for mental stress and support for family members. The Hospice has revolutionized reaching community residents by training staff to administer care at patients' homes and also teaching family members effective ways of supporting the efforts and preventing further vulnerabilities. Mothers or guardians, for instance, learn proper nutrition and hygiene to improve health and the living environment and reduce the risks of spreading or contracting infections.

The home-based care approach has proven tremendously successful for Soweto Hospice who now devotes 70 percent of their resources for care in the patients' homes and 30 percent at their Diepkloof in-patient ward. Adult patients can also participate with Soweto Hospice's skills training program, while children of patients are thriving at a unique early child day care and development center established by the Hospice in the nearby Mapetla suburb.

Since Hospice and palliative type care is about comforting those with life-threatening diseases, South Africa's popular Takalani Sesame television and radio character named Kami -- created as a five-year-old orphan who also happens to be the world's first HIV positive Muppet -- visited Soweto Hospice and the Mapetla Daycare Centre for World Hospice and Palliative Care Day (observed officially on October 11). Sick children and well children were able to spend time with the positive role model who inspires them in practical ways to live happily ever after. USAID is instrumental in supporting the development of Takalani Sesame and Kami in South Africa.

For more information about USAID and its programs in South Africa, please visit: www.usaid.gov.

Public Information: 202-712-4810

Source: U.S. Agency for International Development

CONTACT: USAID Press Office, +1-202-712-4320

Web Site: http://www.usaid.gov/



 


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Information in this article was accurate in October 15, 2008. The state of the art may have changed since the publication date. This material is designed to support, not replace, the relationship that exists between you and your doctor. Always discuss treatment options with a doctor who specializes in treating HIV.