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Analysis of care/support needs for PWA in Japan.


Int Conf AIDS. 1996 Jul 7-12;11(2):177 (abstract no. We.D.3705). Unique

Objectives: To identify what kind of services PWAs needs, care/support services offered by Japan Hiv Center(JHC) were analyzed. Methods: Within those whom JHC Osaka and JHC Tokyo provided consultation between September 1991 and December 1995, care records were analyzed for 125 person who had direct care/support services by JHC. Results: 1) 39 and 46 clients were PWAs infected through blood products and by other routes of transmission, respectively. 40 clients were members of PWAs' family and 22 of them were of hemophiliacs. 2) 69% of PWAs with hemophiliacs gained information of our care support services through their friends who were JHC's staff or though 'hotline counseling for hemophiliacs'. 65% of other PWAs gained access for the care/ support through our hotline counseling service. 3) 85% of primary support were 'buddy' services and 'face to face counseling'. 4) Care/support services by JHC consisted for the greater part of providing 'buddy' services for PWAs or their family members (90%), face to face counseling for PWAs (83%) and counseling for family members of PWAs(83%). Other services required were: (1) handling social services and legal proceedings on behalf of the clients, (2) housekeeping, (3) nursing service, 4) holding a party, (5) giving therapy, (6) translation of languages, (7) religious support, and (8) excursion. Conclusions: Nearly half of HIV transmission reported in Japan is for hemophiliacs. As the self help organization of hemophiliacs has been providing peer counseling services, there was a difference or care/support needs for PWAs between hemophiliacs and others. Providing care/support showed that PWAs themselves and their family members became psychologically more stable by confiding their feeling to buddies or counselors. First action at the primary care support by JHC's staff was extremely of importance in keeping quality of life for PWAs and their family.

*Health Services Accessibility *Health Services Needs and Demand *Hemophilia *HIV Infections/PSYCHOLOGY *Social Support


Information in this article was accurate in January 30, 1997. The state of the art may have changed since the publication date. This material is designed to support, not replace, the relationship that exists between you and your doctor. Always discuss treatment options with a doctor who specializes in treating HIV.