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AIDS Treatment Data Network
(ATDN) Network Update

January 10, 1999
Treatment Review, Issue #29 * Winter 1999

There have been significant changes in HIV treatment and care in the last year. The Network has made many changes as well. Our members, many of whom filled out an extensive survey called The TOP Project, said that managing HIV involves much more than just taking a combination of drugs. Everyone has individual needs - some more urgent or serious than others, but having someone to help them through the process is crucial. The TOP Project was funded by the CFDA-Vogue Initiative/New York City AIDS Fund of The New York Community Trust. The results of this study convinced us that simply providing a description of a treatment does not translate into success.

For example, managed care and health maintenance organizations have made it increasingly difficult for people to access the timely care and treatments they need. Even those few members that have good health insurance say they spend a lot more time dealing with HIV this year than last year. This includes everything from scheduling medications to arranging their day to day activities. We've put our ten years of experience providing HIV information and counseling to good use by opening a case management program that offers a new approach to managing HIV. The program also includes supportive counseling services to help you stick with your treatment decisions - an issue that almost everyone with HIV has to deal with on an ongoing basis. If you are an HIV-positive, English or Spanish speaking New York City resident, we invite you to join this program.

Regardless of where you live, The Network provides a range of services that could help you to deal with constant changes in HIV treatment and care. We provide easy to understand information, counseling and direct referrals to anyone interested in an experimental drug study, as well as other treatment programs. We mail, fax, or e-mail Simple Fact Sheets about treatments, AIDS and HIV-related conditions, and clinical trials. And if you need to know what treatments are available through an AIDS Drug Assistance Program (ADAP) or Medicaid program in your state, or through a pharmaceutical company sponsored access program, you can still contact The Access Project. Like all other Network services and resources, there is no fee involved, or insurance required. Our World Wide Web site address is http://www.aidsinfonyc.org/network In addition, the Winter 1999 edition of The Experimental Treatment Guide is now available. It includes descriptions and contact information for over 100 treatment programs and experimental drug studies. The Guide includes updated drug descriptions, and definitions of terms and conditions related to HIV treatment and care. Please call us at (800)734-7104 if you are interested in an English or Spanish language version of The Experimental Treatment Guide.

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