AEGiS-10IAC: Outcomes of the hotline for hemophiliacs with HIV in Japan.

10th International AIDS Conference

Yokohama, Japan — Aug 7-12, 1994

Outcomes of the hotline for hemophiliacs with HIV in Japan.

Int Conf AIDS 1994 Aug 7-12; 10:402 (abstract no. PD0788)
Ikegami M, Ohta Y, Ishigami W, Okamoto K, Yashiki K, Gotoh M; CARES, Japan HIV Center, Osaka.

OBJECTIVE: To assess the social care needs of hemophiliacs with HIV in Japan.

METHODS: Social aspects of hemophiliacs with HIV in Japan were analyzed through 'Hemophiliac Hotline' during the period of 6 months (June-Dec. 1993) run by CARES, an NGO which was established in cooperation with Osaka Association of Hemophiliacs and Japan HIV Center.

RESULTS: Most of the calls were made by mothers of hemophiliac children. 35% of total calls (46 calls) were from persons who were either HIV positive or friends or family members of someone who was HIV positive. The calls sought general information on HIV (50%), questions regarding medication (31%), pension (23%), when and how to tell the child of his HIV status (19%), compensations (15%), treatment (12%), friendly association (12%), privacy (12%), medical fees (8%), insurance (6%) and others.

DISCUSSION AND CONCLUSIONS: Hemophiliacs with HIV need more information on various social issues such as insurance, when and how to tell the child of his HIV status, compensations, medical fees, financial matters which were not asked by those who were not HIV positive. These results show hemophiliacs with HIV need formal and informal supports to cope with these social issues.

Keywords: AEGIS, Hemophilia A, Hotlines, HIV Seropositivity, HIV Infections, Health Services Needs and Demand, Family, Japan, Child, Human, ICA10
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PD0788