AEGiS-14IAC: Training interviewers to collect data on stigma and discrimination: Relevant lessons learned for programs.

14th International AIDS Conference

Barcelona, Spain - July 7-12, 2002

Training interviewers to collect data on stigma and discrimination: Relevant lessons learned for programs.

Int Conf AIDS 2002 Jul 7-12; 14:(abstract no. TuOrF1212)

Kopoka P, Nyblade L, Mbwambo J, Kilonzo G, Mathur S, MacQuarrie K
University of Dar es Salaam, Dar es Salaam, Tanzania

ISSUES: HIV-related stigma and resulting discrimination is increasingly recognized as a significant barrier to HIV programming yet little data exists to guide programs and policies aiming to address stigma.

DESCRIPTION: During a research project to understand HIV-related stigma in Tanzania, a 4week training of research staff provided valuable lessons for programs. Prior to starting the project work, it was necessary for the research team to work through recognizing HIV-related stigma in their own lives, and reflect and process their own stigma-related issues (self-stigmatization, stigma towards others, being stigmatized).

ISSUES: Two key lessons were learned from the training. First, individuals who have been exposed to HIV/AIDS information to a larger degree than the general public, still have many fears and misconceptions related to transmission of HIV. Processing, reflecting, and discussing HIV/AIDS information with a knowledgeable individual or group was essential to combating fears that contribute to stigma and discrimination. Second, stigmatizing attitudes and discriminatory behaviors are to some degree unconscious. Individuals may be unaware that what they are saying or doing is stigmatizing or the negative impact of their attitudes and actions. Value clarification exercises focused on HIV-stigma and a safe environment to openly discuss sexuality and death, allowed the research staff to break down their own HIV-related stigmas, stigmatizing language, and behavior.

RECOMMENDATIONS: To combat stigma and resulting discrimination, programs need to provide safe opportunities and spaces for individuals and groups to not only receive HIV/AIDS information and knowledge, but to also process and discuss it. There is a need to develop programs that focus on reducing stigma as a primary goal and offer direct, structured opportunities for individuals, groups and communities to reflect and discuss HIV-related stigma and resulting discrimination.

Keywords: AEGIS, Acquired Immunodeficiency Syndrome, HIV Infections, Stereotyping, HIV Seropositivity, Public Opinion, Attitude, Tanzania, Public Policy, education

020707
TuOrF1212