CDC Frequently Asked Questions: HIV/AIDS and Developmentally Disabled Persons


CDC National Prevention Information Network - 1995

1. Are there any national organizations that provide HIV/AIDS education to developmentally disabled persons?

Two such agencies are the Young Adult Institute (1) and the Association for Retarded Citizens (ARC), Research and Program Services, HIV Prevention Project (2). Both agencies are involved in curriculum development, staff training programs, and information dissemination targeting this population. They also produce educational materials for developmentally disabled persons.

2. Are there any statistics on the number of developmentally disabled persons who have contracted HIV or who have been diagnosed with AIDS?

The Centers for Disease Control and Prevention (CDC) has not released any statistics at the present time. To locate information about AIDS and developmentally disabled persons, contact a major library in your local area to locate medical literature in journals such as the Journal of the American Medical Association or New England Journal of Medicine, and to obtain information about searching databases on MEDLARS, which provides access to MEDLINE and AIDSLINE. The National Library of Medicine, through a network of regional libraries across the U.S., operates those databases. Additional information can be obtained by calling 800-638-8480.

RESOURCES

"HIV Prevention Education for Exceptional Youth," ERIC Digest, November 1991, E507. Council for Exceptional Children, 1920 Association Drive, Reston, VA 22091-1589, (703) 620-3660 (voice and TDD)

HIV Infection and Developmental Disabilities: A Resource for Service Providers, 1992, Croker, A., Cohen, H., Kastner, T., Editors, Paul Brookes Publishing Co., P.O. Box 10624, Baltimore, MD 21285-0624, (410) 337-9580.

HIV Prevention and AIDS Education: Resources for Special Educators, 1991, Council For Exceptional Children, 1920 Association Drive, Reston, VA 22091-1589, (703) 620-3660 (voice and TDD)

Special Health Care in the School, 1991, Council For Exceptional Children, 1920 Association Drive, Reston, VA 22091-1589, (703) 620-3660 (voice and TDD)

ORGANIZATIONS

Association for Retarded Citizens (2)
Research and Program Services
HIV Prevention Project
500 E. Border St., Ste. 300
Arlington, TX 76010
(817) 261-6003

The project educates developmentally disabled persons about HIV prevention through training developed by program staff. This program is also designed to educate administrators, board members, and staff.

Council for Exceptional Children
1920 Association Drive
Reston, VA 22091-1589
(703) 620-3660 (voice and TDD)

This organization is a co-partner with Educational Resources Information Center (ERIC) which operates a clearinghouse on resources for educating children with physical and mental disabilities.

Young Adult Institute (1)
AIDS Professional Education Program
460 W. 34th Street, 11th Floor
New York, NY 10001-2382
(212) 563-7474

This organization provides educational materials and offers training programs for professionals who work with developmentally disabled persons.

* * * * *

This fact sheet is part of the CDC NAC "Frequently Asked Questions" series. The fact sheets in the series serve as brief introductions to a variety of HIV/AIDS-related topics. Clearinghouse staff can assist you with finding more detailed on this, or other subjects related to HIV/AIDS.

To obtain more information, or to order Clearinghouse materials listed above, phone (800) 458-5231.

February, 1995 - Inventory No. B337
950201
CFAQ0003

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Always watch for outdated informaton. This article first appeared in 1995. This information is designed to support, not replace, the relationship that exists between you and your doctor.
©1995. AEGIS.